Background: Patient-generated health data (PGHD) are data collected through technologies such as mobile devices and health apps. The integration of PGHD into health care workflows can support the care of chronic conditions such as multiple sclerosis (MS). Patients are often willing to share data with health care professionals (HCPs) in their care team; however, the benefits of PGHD can be limited if HCPs do not find it useful, leading patients to discontinue data tracking and sharing eventually. Therefore, understanding the usefulness of mobile health (mHealth) solutions, which provide PGHD and serve as enablers of the HCPs' involvement in participatory care, could motivate them to continue using these technologies.

Objective: The objective of this study is to explore the perceived utility of different types of PGHD from mHealth solutions which could serve as tools for HCPs to support participatory care in MS.

Method: A mixed-methods approach was used, combining qualitative research and participatory design. This study includes three sequential phases: data collection, assessment of PGHD utility, and design of data visualizations. In the first phase, 16 HCPs were interviewed. The second and third phases were carried out through participatory workshops, where PGHD types were conceptualized in terms of utility.

Results: The study found that HCPs are optimistic about PGHD in MS care. The most useful types of PGHD for HCPs in MS care are patients' habits, lifestyles, and fatigue-inducing activities. Although these subjective data seem more useful for HCPs, it is more challenging to visualize them in a useful and actionable way.

Conclusion: HCPs are optimistic about mHealth and PGHD as tools to further understand their patients' needs and support care in MS. HCPs from different disciplines have different perceptions of what types of PGHD are useful; however, subjective types of PGHD seem potentially more useful for MS care.@en

COVID-19 pandemic may have captured our attention over the last months, but there are several pandemics currently active. Understanding the nature of a pandemic and learning how to design for, and during a pandemic is more than a contemporary need. In this workshop we will introduce the stages of a pandemic using a public health perspective, and together with the participants, we will reflect on designing for each stage and different potential stakeholders. The aim of the workshop is to explore how we design during pandemics such as COVID-19 and how these situations can influence the design of previously developed health and wellbeing related solutions, as well as our practices as designers. The objectives are to: (1) gain understanding regarding infectious outbreaks, (2) explore design opportunities and challenges during rapidly changing contexts, (3) reflect on the effect of a pandemic on the design process. The benefits of this multidisciplinary workshop are multiple, some of which are: understanding of the pandemic, familiarizing with design tools suitable for designing through pandemics, and exploration of ideas on designing for and during pandemics.@en